Send a donation View our products
Latest Posts

Announcement – Investigating a Merge

The scleroderma society have been working closely with the RSA over the past eighteen months and wil [...]

Rare Disease Day – 28th Feb

This year we are supporting rare disease day, day-by day, hand-in-hand. We are kicking off the campa [...]

Orphan Drugs

Orphan Drugs In November 2014 I attended the World Orphan Drug Conference to meet with orphan (rare) [...]

Digital Ulcer Clinical Policy

NHS England has released a policy on commissioning Sildenafil and Bosentan for [...]

Support for Carers and Family members

President of Scleroderma Australia, talks about the role of the carer and family members... [...]

Follow us on twitter